Helpful Resources

Helpful Resources

Government Agencies

Health Resources and Services Administration
Division of Transplantation
Room 12C-06, Parklawn Building
5600 Fishers Lane
Rockville, MD 20857
Phone: 301–443–7577
Internet: www.hrsa.gov
HRSA also maintains a website devoted to organ donation at www.organdonor.gov
HRSA’s Division of Transplantation administers the OPTN through a contract with UNOS, whose website can be found at www.transplantliving.org. You can request a packet of information about kidney transplantation by calling UNOS at 1–888–894–6361 (1–888–TX–INFO–1).

Children’s Medical Services

Nongovernment Organizations

Many national organizations—including Government agencies, private foundations, and commercial industries—have joined the Coalition on Donation to promote organ and tissue donation through educational programs and campaigns conducted nationally and at the local level.

Coalition on Donation
700 North 4th Street
Richmond, VA 23219
Phone: 804–782–4920
Fax: 804–782–4643
Internet: donatelife.net

TransWeb:

All About Transplantation and Donation is a nonprofit educational website (www.transweb.org) featuring answers to frequently asked questions, donor memorials, patient experiences, and a reference section.

Additional Organizations That Can Help

American Association of Kidney Patients
3505 East Frontage Road
Suite 315
Tampa, FL 33607
Phone: 1–800–749–2257
Fax: 813–636–8122
Email: .(JavaScript must be enabled to view this email address)
Internet: www.aakp.org

American Diabetes Association
ATTN: National Call Center
1701 North Beauregard Street
Alexandria, VA 22311
Phone: 1–800–342–2383
Email: .(JavaScript must be enabled to view this email address)
Internet: www.diabetes.org

American Kidney Fund
6110 Executive Boulevard
Suite 1010
Rockville, MD 20852
Phone: 1–800–638–8299
Email: .(JavaScript must be enabled to view this email address)
Internet: www.kidneyfund.org

American Society of Transplantation
15000 Commerce Parkway
Suite C
Mount Laurel, NJ 08054
Phone: 856–439–9986
Fax: 856–439–9982
Email: .(JavaScript must be enabled to view this email address)
Internet: www.a-s-t.org

Life Options Rehabilitation Program
c/o Medical Education Institute Inc.
414 D’Onofrio Drive
Suite 200
Madison, WI 53719
Phone: 1–800–468–7777
Fax: 608–833–8366
Email: .(JavaScript must be enabled to view this email address)
Internet: www.lifeoptions.org
www.kidneyschool.org

National Kidney Foundation, Inc.
30 East 33rd Street
New York, NY 10016
Phone: 1–800–622–9010
Fax: 212–689–9261
Email: .(JavaScript must be enabled to view this email address)
Internet: www.kidney.org

Additional Reading

If you would like to learn more about kidney failure and its treatment, you may be interested in reading the following:

AKP Patient Plan
This is a series of booklets and newsletters that cover the different phases of learning about kidney failure, choosing a treatment, and adjusting to changes.
American Association of Kidney Patients
3505 East Frontage Road
Suite 315
Tampa, FL 33607
Phone: 1–800–749–2257
Fax: 813–636–8122
Email: .(JavaScript must be enabled to view this email address)
Internet: www.aakp.org

Getting a New Kidney: Facts About Kidney Transplants and Keeping Your New Kidney Healthy: Facts About Transplant Medications
American Society of Transplantation
15000 Commerce Parkway
Suite C
Mount Laurel, NJ 08054
Phone: 856–439–9986
Email: .(JavaScript must be enabled to view this email address)
Internet: www.a-s-t.org/index2.cfm?Section=patients&Sub1Section=patient_education_brochures&Sub2Section=english&content=available_brochures.html

Kidney Transplantation
American Diabetes Association
ATTN: National Call Center
1701 North Beauregard Street
Alexandria, VA 22311
Phone: 1–800–342–2383
Email: .(JavaScript must be enabled to view this email address)
Internet: www.diabetes.org/type-1-diabetes/kidney-transplants.jsp

Medicare Coverage of Kidney Dialysis and Kidney Transplant Services
Publication Number CMA-10128
U.S. Department of Health and Human Services
Centers for Medicare & Medicaid Services
7500 Security Boulevard
Baltimore, MD 21244–1850
Phone: 1–800–MEDICARE (1–800–633–4227)
TDD: 1–877–486–2048
Internet: www.medicare.gov/publications/pubs/pdf/esrdcoverage.pdf

What Every Patient Needs to Know
United Network for Organ Sharing
P.O. Box 2484
Richmond, VA 23218
Phone: 1–888–TX–INFO–1 (894–6361)
Internet: www.unos.org

Newsletters and Magazines

Family Focus Newsletter (published quarterly)
National Kidney Foundation Inc.
30 East 33rd Street
New York, NY 10016
Phone: 1–800–622–9010
Email: .(JavaScript must be enabled to view this email address)
Internet: www.kidney.org

For Patients Only (published six times a year)
ATTN: Subscription Department
18 East 41st Street
20th Floor
New York, NY 10017–6222

Renalife (published quarterly)
American Association of Kidney Patients
3505 East Frontage Road
Suite 315
Tampa, FL 33607
Phone: 1–800–749–2257
Fax: 1–813–636–8122
Email: .(JavaScript must be enabled to view this email address)
Internet: www.aakp.org