News

Upcoming AUCD 2020 Virtual Conference

Mailman Center Presentations

A State Mobilizing to Provide Equitable Healthcare for People with ID/DD and Complex Medical Conditions During a Pandemic
Presenters:
Shelly Baer, Jeffrey Brosco, Linda Starnes, Bryan Russel

Title:
A State Mobilizing to Provide Equitable Healthcare for People with ID/DD and Complex Medical Conditions During a Pandemic.

Date and Time:
Concurrent sessions will run on December 7th from 1:45 — 4:30 pm EST and Tuesday, December 8th from 1:45 — 4:30 pm EST. The exact date and time of each session will be provided by mid-October.

Abstract:
The COVID19 pandemic created a national healthcare crisis, especially for the disability community. State policies to distribute limited resources such as ventilators led to discrimination against people with disabilities. In many states, disability rights leaders filed lawsuits and fought to have their voices heard. In contrast, Florida’s statewide disability organizations helped develop the crisis standards of care policy and related training for healthcare providers.

Creating Infrastructure in the U.S Virgin Islands for Children with Special Medical and Developmental
Presenters:
Robert Fifer, Karen Brown

Title:
Creating Infrastructure in the U.S. Virgin Islands for Children with Special Medical and Developmental

Date and Time:
Concurrent sessions will run on December 7th from 1:45 — 4:30 pm EST and Tuesday, December 8th from 1:45 — 4:30 pm EST. The exact date and time of each session will be provided by mid-October.

Abstract:
In 2017, the University of Miami was awarded a HRSA grant that focused on the provision of Zika-related health care in the U.S. Virgin Islands where resources for children with special health care needs, medical and developmental, were essentially non-existent. This presentation will detail how health care infrastructure could be established with limited or no appropriate resources. We will address critical components, critical partners, and sustainability of the infrastructure.

Parent and Family Navigator Models: Success in Linking Individuals with Developmental Disabilities to Services during the COVID-19 Epidemic and Beyond
Presenters:
Maite Schenker, Nancy Torres, Allison Kumnick (Medical/PH student), Gabby Llano (Medical/PH)

Title:
Parent and Family Navigator Models: Success in Linking Individuals with Developmental Disabilities to Services during the COVID-19 Epidemic and Beyond

Date and Time:
Concurrent sessions will run on December 7th from 1:45 — 4:30 pm EST and Tuesday, December 8th from 1:45 — 4:30 pm EST. The exact date and time of each session will be provided by mid-October.

Abstract:
The Family Navigator Program at the University of Miami’s Mailman Center for Child Development presents our unique model and years of data to support the effectiveness of the program. The COVID-19 crisis resulted in rapidly changing needs of people with disabilities and their families; and the navigators were able to assist families through this difficult time, serving as a case study for the sustainability and adaptability of this program.

Telehealth and COVID-19
Presenters:
Jason Jent, Willian Rothenberg

Title:
Telehealth and COVID-19

Date and Time:
Concurrent sessions will run on December 7th from 1:45 — 4:30 pm EST and Tuesday, December 8th from 1:45 — 4:30 pm EST. The exact date and time of each session will be provided by mid-October

Abstract:
This presentation will examine how the University of Miami (UM) Parent-Child Interaction Therapy (PCIT) team utilized key implementation strategies to rapidly transition a behavioral parenting program to telehealth. This presentation will provide example training strategies used to scale the utilization of telehealth in order to continue to provide evidence-based services to families of children with disabilities during the COVID-19 pandemic. The presentation will also examine how effective these techniques were.  

Strategies for Improving Services for Children and Families In and Out of Pandemic
Presenters:
Ruby Natale

Title:
Strategies for Improving Services for Children and Families In and Out of Pandemic

Date and Time:
December 7 from 3:30 to 4:45 pm